Wednesday, November 25, 2009

dealing with alzheimer

I put on my navy-blue sleeveless top before heading to mom's home Sunday morning. Sleeveless top was a mistake.

Instead of asking me repeatedly where I live, mom asked, "Aren't you cold? You should put on your sweater." I replied in my normal tone of voice, "No, I'm not. I feel fine." In less than a couple minutes, she asked again, "Aren't you cold? You should put on your sweater." I felt a little annoyed, but I tried to control my impatience, knowing it's the alzheimer that affects her short-term memory. "No," I replied curtly. The cycle didn't end. She asked again, and again, and again, until I lost it. Of course I know she said it out of concern. Yet, my faculty to reason lost to my reflex and temper.

Mom was cleaning the dishes after lunch. I let her so that I could observe how much she's still able to do. In the midst of the chore, she forgot about the dirty dishes and thought she was washing up. As a result, she wiped her face (several times) with the towel that's used to clean the counter top. I tried to stop her by telling her that it's the wrong towel. Well, she talked back and said, "it's MY towel." Perhaps she mistook that I was admonishing her of using the wrong towel. I couldn't stop her. I couldn't tell from what ran through my mind: perhaps feeling sad that her condition deteriorates, perhaps feeling rejected that she didn't realize I was trying to help, or perhaps finding it hilarious that she just mixed everything up. And I wasn't able to laugh at anything.

Mom called me 姐姐 twice. I know I shouldn't have gotten upset but I did, twice.
"Did you just call me 姐姐?" I asked harshly.
"No, I did not," mom said.
"Do you know who I am?" I wouldn't stop.
"Who are you?"
"You can call me Grace, or 恩, or your daughter. I'm not your 姐姐." Mom repeated my name.

Was it a slip of tongue or was she not able to recognize me? I didn't know how to react right on the spot besides getting upset.

Now that I have time to think, I can remember. It was a long time ago, 10 years ago perhaps, mom would ask, "who are you?" as a response to my "hello mom" when I phoned home. She couldn't recognize my voice from very early on and I had no idea that might be alzheimer talking. I was furious that a mom wouldn't recognize her daughter's voice.

Sunday's visit was a lousy one. I didn't like what I saw. I didn't like how I responded. I'm seeing her tomorrow. Hopefully, prayerfully, I will do a better job. Well, tomorrow is going to be easier because the home aide is there. Upcoming Sunday's visit is the bigger challenge, as I have no one to turn to.

Definitely no wearing sleeveless.

4 comments:

ablogaday said...

Wonder if there's anything you can learn from the wife of Charles K. Kao when she needs to get adapted to her husband who no longer remembers his wife. She has to give up that expectation and re-invent herself as his new friend everyday, living with him in a new kind of relationship.

Oops! Did I not just come from Mars again, and forgot to write some comforting words?

Must be hard for you, BigHead... At ease, excuse her not because she's your mom, excuse her because God has forgiven the inexcusable in us.

big_head said...

No la. You're not from Mars. I was totally kidding last time.

The inexcusable is me. After the visit, I'm more upset with myself that I didn't react better. Thanks for reminding me about God's forgiveness.

Happy Thanksgiving, ablogaday.

ablogaday said...

Well, we never remember Thanksgiving here in HK, do we?

Last night (25 Nov) I tutored my students from 7 til 11:44 pm, yet it was my 19th wedding anniversary. My 2 daughters had prepared something for me and Lulu, but gave up and went to bed finally with disappointment. So do you think I got time to remember one more festival?

Sleep early, that will help your temper a bit... ha!

big_head said...

I read Ecclesiastes 9 today. Think you too may benefit from reading it. Cheers.